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  #641  
Old 06-23-2018, 11:41 AM
fleetus macmullitz's Avatar
fleetus macmullitz fleetus macmullitz is offline
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Default If you don’t play it already, it’s a great pick me up!

“Doc Severinson and The Tonight Show Band”

Power baby!

https://music.amazon.com/albums/B000...=ATVPDKIKX0DER
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  #642  
Old 06-23-2018, 08:16 PM
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Default Foundation One

I've mentioned Foundation One here ---- this is an expensive - not covered by insurance - Genomic Sequencing testing biz.....


https://www.foundationmedicine.com/g...foundation-one



$6,500 or so will get you a comprehensive result for which drugs will, or have, had good results with chemotherapy..... or if there are clinical trials specific to your type of cells.... or any other useful information that might help guide the docs (mostly yourself) to some form of treatment(s).

I had hoped mine would come back with a specific "mutation" that KEYTRUDA treats..... but no such luck. At least I know.


This is a 62 page 'report' -- but the box on the front page is all that is important initially...... and sadly mine sucks.

FIRST identifies mutations and markers.......


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Sorry it's hard to read the columns ---- but basically it matches these mutations or markers with any KNOWN chemo treatment that works on it -- or clinical trials - Targeted therapy, etc. There are many TYPES of cancer -- Lung - Liver - Bone - but what's IMPORTANT is what cellular makeup is the cancer ---- because then you can really drill down on finding something known to be effective on THOSE CELLS !!




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Last edited by GregWeld; 06-23-2018 at 08:19 PM.
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  #643  
Old 06-24-2018, 09:03 PM
xplantdad xplantdad is offline
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Hi Greg, Again I haven't been on this site in a while...but something told me I should log on.

I didn't expect to see these posts, but again I know that you are a fighter and will not give up. Cancer SO sucks...

It's good to hear that your most recent scans show no additional growth. Mayo is a great hospital with great docs, but sometimes they need to open their eyes to reality and alternate therapies. Like you, we've experienced these issues at Mayo as well.

Anyways, please let us know then next time you are out here. We'd love to meet up for a few minutes and say hi. BTW, Lynn and Holly say hi-and we all want you to take care
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  #644  
Old 06-24-2018, 10:29 PM
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Quote:
Originally Posted by xplantdad View Post
Hi Greg, Again I haven't been on this site in a while...but something told me I should log on.

I didn't expect to see these posts, but again I know that you are a fighter and will not give up. Cancer SO sucks...

It's good to hear that your most recent scans show no additional growth. Mayo is a great hospital with great docs, but sometimes they need to open their eyes to reality and alternate therapies. Like you, we've experienced these issues at Mayo as well.

Anyways, please let us know then next time you are out here. We'd love to meet up for a few minutes and say hi. BTW, Lynn and Holly say hi-and we all want you to take care

Hey buddy! Good to hear from you!

I'm so happy to hear Holly is doing great!

We'll be back down in September UNLESS I require some "intervention" or my liver stents need attention. I'm hoping I need neither.

The one thing people forget - and I don't expect anyone to remember my ailments - but the LIVER thing was going to kill me..... then the stent thing and it's issues was going to do me at some point (and not 10 years from now)..... and now this newest news. NONE OF IT has gotten me yet!! So F'it.

See ya soon Bruce! XOXO


PS --- I know it's a long ways from you --- but ADRIENNE is the Executive Chef at "The Salty Sow" ---- Tatum and Cactus area...... if you're over that way -- say hello!
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  #645  
Old 06-26-2018, 01:15 PM
AU Doc AU Doc is offline
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Quote:
Originally Posted by GregWeld View Post
Well..... I don't know as I'd characterize it as that exactly! The first go 'round I certainly did ---- so that's bought me 2 years so far (A VERY VERY VERY LONG TIME!!! Given the "6 months to live").

Cancer likes to mutate and is an EXTREMELY TRICKY little F ***er......
Very true. But I'd say any victory against cancer is a victory worth celebrating.

Sorry to hear about the genomic sequencing results, but it's still good news that your spots haven't progressed.
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  #646  
Old 06-26-2018, 09:54 PM
xplantdad xplantdad is offline
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I remember you telling us all about the liver issues, the stent issues and how they wouldn't be able to take it out, etc. Shows what they know

Our next door neighbor with the leukemia also used the oil that you sent him info on...He's doing okay, too! He's still not strong enough to do yard work, but that's why I live next door to him .

Greg, as far ass you coming out here....it sounds good! We will see you in September, then!




Quote:
Originally Posted by GregWeld View Post
Hey buddy! Good to hear from you!

I'm so happy to hear Holly is doing great!

We'll be back down in September UNLESS I require some "intervention" or my liver stents need attention. I'm hoping I need neither.

The one thing people forget - and I don't expect anyone to remember my ailments - but the LIVER thing was going to kill me..... then the stent thing and it's issues was going to do me at some point (and not 10 years from now)..... and now this newest news. NONE OF IT has gotten me yet!! So F'it.

See ya soon Bruce! XOXO


PS --- I know it's a long ways from you --- but ADRIENNE is the Executive Chef at "The Salty Sow" ---- Tatum and Cactus area...... if you're over that way -- say hello!
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  #647  
Old 06-26-2018, 10:35 PM
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Originally Posted by AU Doc View Post
Very true. But I'd say any victory against cancer is a victory worth celebrating.

Sorry to hear about the genomic sequencing results, but it's still good news that your spots haven't progressed.


In baseball -- it would be "little ball" -- with cancer -- you take any little victory you can get.

I'm in no pain - I look "fine" (debatable) - I'm eating "okay" - and my spots didn't grow (this time) -- I'll take that as all good stuff!
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  #648  
Old 06-27-2018, 12:06 AM
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Quote:
Originally Posted by GregWeld View Post
In baseball -- it would be "little ball" -- with cancer -- you take any little victory you can get.

I'm in no pain - I look "fine" (debatable) - I'm eating "okay" - and my spots didn't grow (this time) -- I'll take that as all good stuff!
"Little ball".... "small ball".... semantics.

Get on livin! Yee haawwwww!
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  #649  
Old 06-27-2018, 09:18 AM
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I caught a quick blurb on the news last night, something about the FDA finally approving a form of CBD oil to be used for seizure medication. I missed most of the story though, has anyone in here heard of this or have any more information on it?

Also, my wife met someone at a convention recently that said there are provisions in the new Farm Bill that allow the production of CBD Oil in the US finally...but I'm not sure if it has passed yet or if the provision made it to the final version.

All of the above is good news to me, it tells me this movement is gaining traction...
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  #650  
Old 06-27-2018, 12:27 PM
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Default Thc/cbd

Glad to hear you are feeling good
That means you will be able to test that
beast a Thunderhill tomorrow... have fun
and be safe out there.. sometimes when they
grip that good and you push past that point
they let go really fast and spin time acoming

Bob
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