BID TO HELP! Ellyana has Cystic Fibrosis
 

This is Ty Ingle with the blue carbon fiber 71 Firebird (aka FREEDOMBIRD) that Lateral-g helped get to SEMA 2009, PRI 2010, several shows and TV shows through your generosity, support and friendship. :lateral:

We recently learned that our only niece, Ellyana Renee, was diagnosed with Cystic Fibrosis, a genetic disorder that has a substantial impact on lung function, increased lung infections, and malnutrition due to abnormal production of pancreatic enzymes.

http://i691.photobucket.com/albums/v...ls/Ellyana.jpg

In 2008, Florida started screening newborns for 30 different genetic disorders at birth. Based on Ellyana's infant screen, followed by a full DNA analysis, my sister and brother-in-law learned at her two-week check-up that "Elly" has Cystic Fibrosis. We were immediately referred to a Certified CF Care Center at Nemours here in Orlando - very close to their house thankfully! - and we met with her new team of doctors the very next day.

We did not notice any symptoms in particular, but at her two-week check, Elly had not regained her birth weight. In fact, she had actually lost another ounce even though she was nursing around the clock (literally). She has now started her first treatments for pancreatic insufficiency - enzymes with every feeding, special fat soluble vitamins, and salt. From here, the key is keeping our baby girl as healthy as possible by avoiding respiratory illnesses (even the common cold, etc.) for as long as possible.

Needless to say, we've been on an emotional rollercoaster, especially since we had really never even thought about CF. While there's no way to predict what Elly's particular situation will bring, we are believing beautiful things for her and are, naturally, committed to doing everything we can to help make her life as amazing as she already is!

I share all of this, with the support of many sponsors and moderators, to start an auction thread here of parts they've donated to help with Ellyana's medical expenses. While pregnant, Alysia was covered by her health insurance provider but what she didn't know is that they don't cover newborn infants until they are 6 weeks old... and now Elly has a pre-existing condition. Add the lack of health insurance to a minimum of two doctors visits per month for the rest of her life and you can easily see there's a need...

This is not a scam, this family has a real need and Elly has an incurable life shortening disorder. I asked many here for suggestions on raising funds to help with their increasing needs... and this thread is the result of those suggestions.

The auction will be simple... please bid on the donated items and the highest bidder on February 29th wins! Please make payment to my PayPal address below. All proceeds will go to Elly and her family.

Warmest Regards,
Ty Ingle
PayPal: [email protected]

Auction Items
 

Holley donated an Ultra HP Carb in Hard Core Grey!

http://i691.photobucket.com/albums/v...leyUltraHP.jpg

http://www.holley.com/types/4150%20U...20Aluminum.asp

Year One
 

http://i691.photobucket.com/albums/v...ls/YearOne.png

Year One donated a $400 gift certificate!

https://www.yearone.com/

Phoenix Transmission Products
 

Greg Ducato at Phoenix Transmission Products donated $500 toward a custom torque converter or transmission!

http://i691.photobucket.com/albums/v...OC0120copy.jpg

http://phoenixtrans.com/IntlHome.html

Electric-Life
 

http://i691.photobucket.com/albums/v...ctric-Life.jpg

Electric-Life donated their Shaved Door Handle Kit #99080!

http://i691.photobucket.com/albums/v...20Kit20THN.jpg

Which is a 12 channel keyless entry (99925), wiring harness, 2 qty 60lb door solenoids(99003), emergency entry kit (94300) , trunk release solenoid (TK01-00-001)

http://i691.photobucket.com/albums/v...9952020web.jpg

AND instead of the thrusters swapped them out for 2 qty of the Door Jammers (99520)!

http://electric-life.com/

Modo Innovations
 

http://i691.photobucket.com/albums/v...nnovations.jpg

Shannon at Modo Innovations donated a set of their M110 pedals!

http://i691.photobucket.com/albums/v...els/mi110a.jpg

http://www.modoinnovations.com/

AutoRad Radiators
 

http://i691.photobucket.com/albums/v...o_partners.jpg

Jim & Karen at AutoRad Radiators donated a $300 Gift Certificate towards any AutoRad radiator/core support unit!

http://autoradradiators.com/

Anvil Auto
 

http://i691.photobucket.com/albums/v.../AnvilAuto.jpg

Matt at Anvil Auto donated not one but 2 sets of their Billet Fender Braces!

https://www.anvilauto.com/product_de...ct=fbrace_almn

1 raw aluminum and 1 black anodized!

I would like to put a $200 bid on the Modo pedal set.

Lets get is started!!

Put me down for the following bids!!

-$200 for Holley CArb
$200 for year one
-$200 for Phoenix Trans
-$100 towards Modo
-$100 towards Anvil parts
$150 towards Autorad

Hi Ty

Can we also make donation as I would like to send a cash gift also

and I'll raise it to $125.00

You bet!!! Which reminds me, please check "gift" when sending funds to my PayPal account! :thumbsup:

[email protected]

130fe
 

Chris was already ahead of you both with his bid on the pedals... :_paranoid

put me $500.00 for the carb .

okay I missed that bid somehow

Donation Sent - I will try to do it Monthly

Thanks Kenny! Much appreciated my friend!! :thumbsup:

Nemours
 

Thanks Marty!! I'm trying to set up an account with Nemours here in Orlando... they've never done one before so they are trying to figure it out. I'll keep you posted as I hear more!

Cystic Fibrosis
 

I've gotten a few emails and pm's asking about CF... here's a general explanation from www.babycenter.com


What is cystic fibrosis?

Cystic fibrosis (CF) is a life-threatening genetic disease. A child with CF has a faulty gene that affects the movement of sodium chloride (salt) in and out of certain cells.

The result is thick, heavy, sticky mucus, salty sweat, and thickened digestive juices. These thick secretions can clog the lungs, making a child with CF very prone to breathing difficulties, lung infections (the mucus provides a rich environment for bacteria), and, eventually, severe lung damage. And when thickened digestive fluids from the child's pancreas can't get to the small intestine to break down and absorb nutrients from the food he eats, he may also have digestive and growth problems.

What are the signs and symptoms of cystic fibrosis in babies?

Fifteen to 20 percent of newborn babies with cystic fibrosis have something called meconium ileus at birth. This means their small intestine is obstructed with meconium, the seaweed-green substance that comes out in a baby's first poop. Sometimes the intestine will become twisted or not develop properly as a result. The meconium can also obstruct the large intestine, in which case the baby won't have a bowel movement for one or two days after birth.

Other babies with CF are fine at birth but then develop problems breathing or can't seem to put on weight in their first four to six weeks. Poor growth is one of the first signs of CF. Parents may also notice a nagging cough and wheezing.

Coughing and wheezing are hardly unique to children with CF, of course. These symptoms could be caused by viral bronchiolitis (an inflammation of the small breathing tubes) or asthma, pneumonia, or even a dusty, smoky environment. Each of these conditions is far more common than any genetic disease.

Still, cystic fibrosis is the most common life-shortening genetic disease among people of Northern European descent and should be considered. Other symptoms include salty-tasting skin, a big appetite with no weight gain, and large, greasy stools.

Sometimes the condition doesn't become apparent until a child has had a series of repeated lung infections or severe growth problems. If you think your baby may have any of these symptoms, talk with his doctor.

Cystic fibrosis can't be cured. But there are new treatments that can not only prolong a child's life but may also help make that life more normal. And the earlier CF is diagnosed, the more effective those therapies will be.

http://www.babycenter.com/0_cystic-fibrosis_10869.bc

I would like to donate to the cause also!! I have brand new BMR Fabrication STB014R , 4 point strut tower brace in Red, for a 2010 Camaro sitting on the shelf! Retails is $320
http://www.bmrsuspension.com/?page=p...&productid=468

http://www.bmrsuspension.com/siteart...B014_large.jpg

Chad
 

Thanks brother!! The value of your friendship and continued support are immeasurable! :patriot:

Hoodpins.net
 

Ron Wilson at Hoodpins.net just donated a set of their original Machine Finish Hoodpin Kits!

http://i691.photobucket.com/albums/v...inalnolock.jpg

http://www.hoodpins.net/products.php

Fesler
 

Chris at Fesler Built has just donated the following items!

(1) 1970 Chevelle Hood Latch (natural finish)

http://i691.photobucket.com/albums/v...ls/Img0129.jpg

(1) Large or Medium Shift Boot Ring (polished)

http://i691.photobucket.com/albums/v...BBM-smlmed.jpg

(2) Pair Striker Bolts

http://i691.photobucket.com/albums/v...BSB-716SS9.jpg

(2) Pair 5/16 Hood Adjusters

http://i691.photobucket.com/albums/v...s/HA-Group.jpg

www.feslerbuilt.com

Its the least we could do to help you out. Wish we could do more and wish you guys the best of luck our thoughts and prayers are with you and your family during these hard times.

Auction Update
 

Auction Update for Thursday... less than two weeks left!

Holley Ultra HP Carb (Hard Core Grey) - kennyd $500

Year One Gift Certificate - Chad Fletcher $200

Phoenix Transmission Converter - Chad Fletcher $200

Electric-Life Door Shave Kit & Poppers

Modo Innovations M110 - Chris - 130fe $200

AutoRad Radiators Gift Certificate - Chad Fletcher $150

Anvil Auto 2 x Billet Fender Braces - Chad Fletcher $100

BMR Camaro strut tower brace

Hoodpins.net Machine Finish Hood Pins

Fesler Billet 1970 Chevelle Hood Latch

Fesler Billet Large or Med Shift Boot Ring

Fesler Billet Striker Bolts (2 pairs)

Fesler Billet 5/16 Hood Adjusters (2 pairs)

Thanks again to all involved!!

Bidding ends 2/29! :lateral:

Striker Bolts Set 1 - $75.00
5/16 Hood Adjusters Set 1 - $40.00
5/16 Hood Adjusters Set 2 - $40.00

Thanks Marty!! :thumbsup:

I've updated and added your bids to the "Elly's Angels" spreadsheet!

Elly's Angels Auction
 

Elly's Angels,

Here's a bump to resume bidding with just less than a week left in the auction!!

V/R,
Ty

If you can find out if it clears my super Charger I will place a bid

SLP 575 is the car

Auction
 

300 for the carb
150 for the fender Brace

good luck my prayers are with you

Auction Update for Friday morning... less than one week left!

Holley Ultra HP Carb (Hard Core Grey) - kennyd $500

Year One Gift Certificate - Chad Fletcher $200

Phoenix Transmission Converter - Chad Fletcher $200

Electric-Life Door Shave Kit & Poppers

Modo Innovations M110 - Chris - 130fe $200

AutoRad Radiators Gift Certificate - Chad Fletcher $150

Anvil Auto Billet Fender Braces (1 pair) - Chad Fletcher $100

Anvil Auto Billet Fender Braces (1 pair) - Yanick - yan69 $150

BMR Camaro strut tower brace

Hoodpins.net Machine Finish Hood Pins

Fesler Billet 1970 Chevelle Hood Latch

Fesler Billet Large or Med Shift Boot Ring

Fesler Billet Striker Bolts (1 pair) - Marty $75

Fesler Billet Striker Bolts (1 pair)

Fesler Billet 5/16 Hood Adjusters (1 pair) - Marty $40

Fesler Billet 5/16 Hood Adjusters (1 pair) - Marty $40

My heartfelt thanks for all the bids and to everyone involved!!

Bidding ends at NOON EST on 2/29! :lateral:

Thanks Yan! Very much appreciated!! :thumbsup:

A Day In the Life of Ellyana
 

Copied from Alysia's Facebook Page:

"Whipping up a little salted applesauce, laced with super (not)yummy ADEK vitamins for Elly's night shift. I bet she's gonna be glad when she can swallow the enzyme capsules one day! This little concoction does not taste great (I checked), but it's keeping her chunky. Saucy enzymes + breastmilk: It's what's for dinner...and the other 12+ meals a day!"

Just a glimpse of a day in the life of Ellyana...

Ty,

if a person wanted to, could they just make a donation to your Paypal account to help Ellyana?

Hood Pin's $100.00

You bet! [email protected]

Thanks Jody! :thumbsup:

thanks Ty.

Already got your donation! Thanks again Jody! :thumbsup:

Marquez Design
 

http://i691.photobucket.com/albums/v...rquez_logo.png

Pascual from Marquez Design just donated one of their newly released Master Cylinder Covers!

http://i691.photobucket.com/albums/v...-cover-web.jpg

www.marquezdesign.com