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Old 02-13-2012, 04:16 PM
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OLDFLM OLDFLM is offline
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Thumbs up BID TO HELP! Ellyana has Cystic Fibrosis

This is Ty Ingle with the blue carbon fiber 71 Firebird (aka FREEDOMBIRD) that Lateral-g helped get to SEMA 2009, PRI 2010, several shows and TV shows through your generosity, support and friendship.

We recently learned that our only niece, Ellyana Renee, was diagnosed with Cystic Fibrosis, a genetic disorder that has a substantial impact on lung function, increased lung infections, and malnutrition due to abnormal production of pancreatic enzymes.



In 2008, Florida started screening newborns for 30 different genetic disorders at birth. Based on Ellyana's infant screen, followed by a full DNA analysis, my sister and brother-in-law learned at her two-week check-up that "Elly" has Cystic Fibrosis. We were immediately referred to a Certified CF Care Center at Nemours here in Orlando - very close to their house thankfully! - and we met with her new team of doctors the very next day.

We did not notice any symptoms in particular, but at her two-week check, Elly had not regained her birth weight. In fact, she had actually lost another ounce even though she was nursing around the clock (literally). She has now started her first treatments for pancreatic insufficiency - enzymes with every feeding, special fat soluble vitamins, and salt. From here, the key is keeping our baby girl as healthy as possible by avoiding respiratory illnesses (even the common cold, etc.) for as long as possible.

Needless to say, we've been on an emotional rollercoaster, especially since we had really never even thought about CF. While there's no way to predict what Elly's particular situation will bring, we are believing beautiful things for her and are, naturally, committed to doing everything we can to help make her life as amazing as she already is!

I share all of this, with the support of many sponsors and moderators, to start an auction thread here of parts they've donated to help with Ellyana's medical expenses. While pregnant, Alysia was covered by her health insurance provider but what she didn't know is that they don't cover newborn infants until they are 6 weeks old... and now Elly has a pre-existing condition. Add the lack of health insurance to a minimum of two doctors visits per month for the rest of her life and you can easily see there's a need...

This is not a scam, this family has a real need and Elly has an incurable life shortening disorder. I asked many here for suggestions on raising funds to help with their increasing needs... and this thread is the result of those suggestions.

The auction will be simple... please bid on the donated items and the highest bidder on February 29th wins! Please make payment to my PayPal address below. All proceeds will go to Elly and her family.

Warmest Regards,
Ty Ingle
PayPal: [email protected]
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Last edited by OLDFLM; 02-29-2012 at 11:33 AM.
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