Greg............Myself and I'm sure others here have no words to express our feelings about your situation.........I can do nothing but admire your determination to deal with the options available to combat this disease.....looking forward to the Good-Guys Road Tour
Interesting... I just returned from DC and on the flight I listen to various pod casts. One was by John Stossel and his discussion about the FDA approval of drugs and the approach taken by the federal government. One case study presented was a kid who could not get treatment for cancer (what they tried failed and were out of options) when they heard about something offered in Europe (don't remember the drug name). Long story short, the whole family moved to London for nine months so they could try the drug. Now the kid is cancer free.
If you look at the whole of the aids epidemic, people were experimenting on themselves. This is how they figured out the current treatment.
As I understand it, the current system was borne out of the '60's and thalidomide and the resulting phocomelia. It seems, though, we have really thrown the baby out with the bathwater on our current system and not letting the individual make the choices ON THEIR OWN BODY, especially in cases such as presented in this thread.
It makes you wonder if the government should be doing it at all. Freedom, especially for the adult populace, sometimes requires risk that you may or may not be successful. In this case, taking the risk to improve your quality and / or length of life.
Sure, people ought to be accountable for their actions - you harm someone else (even if you are on drugs), you go to jail (or worse). Of course, I strongly recommend working with a doctor.
It makes you wonder why innovation is not happening significantly more and what could be done to improve the competition between pharmaceutical vendors. Clearly there is a market.
This morning we're packing up and heading out for Vegas for the weekend. Seems I'm traveling three times as much as before I got sick! WTF! But here's the take-away....
I'm UP -- FEELING GOOD -- not fearful of leaving the house and feeling bad... because I feel NORMAL!
Friends are playing this weekend and we intend to party like it's 1999....
I'm dosing the THC/CBD oil at .3 Ml each one time now - just before I go to bed. This is getting the meds in without the stone - because I'm sleeping. And I'm sleeping really really well! For the first time this morning --- I noticed something "else" has changed for me since the Meds..... I used to drink a ton of plain tonic... the quinine helped with my "jimmy legs" I used to get at night. I realized this morning I've not had them at all. Hadn't even thought about 'em.
Thank you for sharing your journey with us and I am glad you are still here and fighting like a Rock Star. I've shared your story with a bunch of people and I hope we call all learn something from this and share this thread with friends.
Steamed white rice & soy sauce will also help with the excess oil in your diet it kinda firms things up and slow digestion down (buy it from your local Chinese take out).
... and since your back on the Mountain Bike you should look at a 4'' Fat Tire bike. It's like being a kid again and they are so much fun.
Brian,
Thank you for sharing your story and I will add you to my prayer list as I didn't know you were sick and keep up the fight. It's a tough one but my secret was not to let it own me.
Side note: Peppermint Tea works wonders for stomach issue's. It's to bad Peppermint Ice cream doesn't have the same benefit because it sure does taste much better.
__________________ marty-mj
Is a car ever really done???? It's like a ball of yarn unwinding, that has no end... Author DKz Garage
Like others have said, I am sorry to hear this news. I am inspired by your attitude, and how you are dealing with it. I have always been impressed with the amount you have helped with the investing thread(it has been a life changer for many). I hope you have continued success with the THC treatment. Best of wishes to you! With any luck I will bump into you at SEMA 2016 and I can thank you for your contributions in person.
mr weld,although i don't know you except from what i read on this forum its sad to learn about your condition.you are lucky to have the support you have here and at home.you truly HAVE everything (pun intended).good luck with your recovery.
Brian Hobaugh SCCA National Tour June 2014
First Hemi 'Cuda Convertible Ever Built
Short clips: Goodguys Pleasanton autocross and pit videos
It's like a ball of yarn unwinding, that has no end... Author DKz Garage
Hybrid Mode
